Anisia's Hope - Fighting Batten Disease
“THE OBJECTS OF THE CIO ARE FOR THE PUBLIC BENEFIT: TO PRESERVE AND PROTECT THE HEALTH OF CHILDREN, YOUNG PEOPLE AND ADULTS AFFECTED BY NEURONAL CEROID LIPOFUSCINOSES (NCL), COMMONLY KNOWN AS BATTEN DISEASE, INCLUDING CLN2 DISEASE AND RELATED FORMS BY; (1) PROVIDING OR ASSISTING IN THE PROVISION OF SUPPORT, EQUIPMENT, THERAPIES, AND SERVICES; (2) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS AND INDIVIDUALS UNDERTAKING RESEARCH INTO THE CAUSES, TREATMENT, PREVENTION AND CURE OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS OF SUCH RESEARCH; (3) ADVANCING THE EDUCATION OF THE PUBLIC, MEDICAL PROFESSIONALS AND CARERS IN ALL MATTERS RELATING TO BATTEN DISEASE, INCLUDING EARLY DIAGNOSIS AND AVAILABLE TREATMENTS.
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Where this organisation works
Anisia's Hope - Fighting Batten Disease is a UK-registered charity with area of operation in United States, Italy, Spain and Germany .
In the UK, Anisia's Hope - Fighting Batten Disease works in England And Wales.
placeRegistered office: West Midlands
